I am a life-long costumer who didn’t find out she was a costumer until just a few years ago. Sadly, I simply thought I was weird, when in reality I was creating my own costume shop in my house. Fortunately, someone in the costume field noticed and gave me a job, so now I get paid to sew, draw, research, apply makeup, teach college students and collect vintage clothes. Hard to believe I used to do it for free.

I have been flexible, anxious and clumsy all my life and didn’t know until last summer that I have  Ehler’s Danlos Syndrome, a rare genetic disorder wherein the collagen gene is defective. Collagen is/are the sticky fibers that make up all connective tissues in the body, including tendons, ligaments, vessels, organs, nerve sheaths, etc. Like many EDS patients and pro football players (mutually exclusive positions), my joints have rather suddenly elected to announce that they are worn out and don’t wish to go on much further, and if I insist otherwise there will consequences. I am insistent.

I love to make things. Drawings, illustrations, lists, clothes, fiber art, quilt (yes, singular–I haven’t finished it yet)—making things keeps me from dwelling on my fear that life is mostly pointless.



2 responses »

  1. It is so cool that you get to do what you love! One of my wife’s friends discovered that she had a talent for making really crazy cool cakes and cupcakes. Sorry to hear about the syndrome that you suffer from. I pray that you don’t suffer too much pain, and that you can somehow get some relief.
    Great job on blog! 🙂


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